This research explores how autoimmune disease affects identity in young adults. Interviews with 25 New Zealanders revealed that diagnosis reshapes identity, relationships with the body, and perceptions of disability. The findings suggest that supporting identity—not just treating disease—could improve health behaviours, wellbeing, and long-term outcomes for people with autoimmune conditions.
Heart failure causes major suffering, high mortality, and escalating healthcare costs. This research identifies what people with heart failure and their carers need from home-based supportive care, including nurse-led support, better communication, and coordinated services. By defining and prioritising key recommendations, the project aims to guide policy toward improving quality of life and reducing hospitalisations.